‘Calling executives and clinicians to account’: User involvement in commissioning cancer services

摘要

Background\ud\udEnglish NHS guidance emphasizes the importance of\udinvolving users in commissioning cancer services. There has been considerable previous research on involving users in service improvement, but not on involvement in commissioning cancer services.\ud\udObjective To identify how users were involved as local cancer service commissioning projects sought to implement good practice and what has been learned.\ud\udDesign Participatory evaluation with four qualitative case studies based on semi-structured interviews with project stakeholders,observation and documentary analysis. Users were involved in every stage from design to analysis and reporting.\ud\udSetting and participants Four English cancer network user involvement in commissioning projects, with 22 stakeholders interviewed.\ud\udResults Thematic analysis identified nine themes: initial involvement, preparation for the role, ability to exercise voice, consistency and continuity, where decisions are made, closing the feedback loop, assessing impact, value of experience and diversity.\ud\udDiscussion Our findings on the impact of user involvement in\udcommissioning cancer services are consistent with other findings on user involvement in service improvement, but highlight the specific issues for involvement in commissioning. \ud\udKey points include the different perspectives users and professionals may have on the impact of user involvement in commissioning, the time necessary for meaningful involvement, the importance of involving users\udfrom the beginning and the value of senior management and PPI facilitator support and training.\ud\udConclusions Users can play an important role in commissioning cancer services, but their ability to do so is contingent on resources being available to support them.